
As an FCA-authorised broker that has helped arrange over 800,000 policies, WeCovr understands the nuances of private medical insurance in the UK. The rise of genetic testing has brought new questions for those considering private health cover. This guide clarifies the rules, your rights, and how your genetic information interacts with your PMI policy.
The world of genetics is advancing at lightning speed. From home DNA kits revealing your ancestry to clinical tests assessing your risk for serious illness, we can now access more information about our genetic makeup than ever before. But with this knowledge comes a pressing question for many in the UK: will a genetic test result affect my ability to get private medical insurance (PMI)?
The short answer, for the vast majority of people, is a reassuring no.
The UK has a robust framework in place designed specifically to prevent "genetic discrimination" by insurers. However, the details matter. Understanding the rules around disclosures, the type of test you've had, and the nature of your insurance application is crucial. In this comprehensive guide, we'll break down everything you need to know about PMI and genetic testing, ensuring you can make informed decisions about your health and your cover with confidence.
Before we dive into the insurance rules, let's clarify what we mean by "genetic testing". It's not one single thing; it's a broad term for various medical tests that identify changes in your genes, chromosomes, or proteins.
People undertake genetic testing for many reasons:
Here are the main types of genetic tests and what they do:
| Type of Genetic Test | Purpose | Example |
|---|---|---|
| Predictive & Pre-symptomatic | To find gene mutations that increase your risk of developing a condition in the future. You have no symptoms at the time of the test. | Testing for the BRCA1 or BRCA2 gene mutation, which increases the risk of breast and ovarian cancer. |
| Diagnostic | To confirm or rule out a specific genetic condition when you are already showing symptoms. | Testing to confirm a diagnosis of cystic fibrosis in a child with respiratory issues. |
| Carrier | To see if you and your partner carry a gene for a condition you could pass on to your children. You typically have no symptoms. | Testing to see if you are a carrier for sickle cell anaemia or Tay-Sachs disease. |
| Pharmacogenomic | To determine how your body will respond to certain medicines, helping doctors choose the most effective drug and dose. | Testing to see if a specific chemotherapy drug will be effective for your type of cancer. |
| Direct-to-Consumer (DTC) | Sold online directly to the public, offering ancestry, wellness (e.g., caffeine sensitivity), and sometimes health risk information. | A 23andMe or AncestryDNA kit. |
The most important distinction for insurance purposes is between predictive tests (taken when you're healthy) and diagnostic tests (taken when you have symptoms). This difference is central to the UK's rules.
The cornerstone of consumer protection in this area is the Code on Genetic Testing and Insurance. This is a voluntary agreement between the UK government and the Association of British Insurers (ABI), which virtually all UK insurers, including every major PMI provider, adhere to.
First established in 2001 and last updated to run until 2025 (with reviews planned), the Code sets out clear rules on how insurers can (and, more importantly, cannot) use genetic test information.
For Private Medical Insurance (PMI), the rule is simple and absolute:
Insurers will NOT ask for or use the result of a predictive or pre-symptomatic genetic test when you apply for PMI, regardless of the level of cover.
This is a powerful protection. It means you can take a predictive test to understand your future health risks without fearing that it will prevent you from getting private health cover or lead to higher premiums.
Confusion often arises between a genetic test result and a diagnosed condition. The Code protects you from having to declare the former, but you must always be honest about the latter.
Let's make this crystal clear:
| Item | Do I Need to Declare This for PMI? | Why? |
|---|---|---|
| A predictive genetic test result (e.g., you have the BRCA gene) | NO | The Code on Genetic Testing and Insurance explicitly forbids PMI insurers from asking for or using this information. |
| A diagnosed medical condition (e.g., a doctor has diagnosed you with breast cancer) | YES | This is part of your medical history. Insurers need to know about diagnosed conditions to assess your application. It doesn't matter if a genetic test helped confirm the diagnosis; the diagnosis itself is what must be declared. |
| Family medical history (e.g., your mother had early-onset bowel cancer) | YES | Insurers have always asked about family history for certain conditions. This is separate from your personal genetic test results. |
| A direct-to-consumer (DTC) test (e.g., from 23andMe) | NO | These are considered predictive or wellness-related tests and are fully covered by the Code's protections for PMI. |
Critical Point: Standard UK private medical insurance is designed to cover acute conditions (illnesses that are curable and short-term) that arise after your policy begins. It does not cover pre-existing conditions (ailments you had before taking out the policy) or chronic conditions (long-term illnesses that require ongoing management, like diabetes or asthma).
This is a common and understandable fear, but the answer is a firm no.
A pre-existing condition is a disease, illness, or injury for which you have already received medication, advice, or treatment, or have experienced symptoms.
A predictive genetic test result that shows an increased risk of a future illness is not a condition. It's a risk factor, just like having high cholesterol or a family history of heart disease. You are still healthy.
Let's look at an example:
The key takeaway is that PMI is there for the "what ifs." The fact that you know you have a higher "what if" chance does not disqualify you from getting cover for it, as long as the condition itself has not yet materialised.
When you apply for PMI, the insurer "underwrites" your policy, meaning they assess the risk and decide on the terms of your cover. There are two main ways this is done in the UK.
This is the most common and simplest route.
This is a more detailed, upfront approach.
For most people, choosing between these underwriting types depends on their medical history and preference for clarity. A specialist PMI broker like WeCovr can explain the pros and cons for your specific situation, helping you make the right choice at no extra cost to you.
While the focus is often on the risks, it's worth noting how genetic information and health data are being used positively by insurers. Many leading UK PMI providers now offer sophisticated wellness programmes that reward you for living a healthy lifestyle.
These programmes encourage activities like:
By engaging with these platforms, you can earn rewards like free coffee, cinema tickets, and even discounts on your renewal premium.
This is where some of the "wellness" reports from direct-to-consumer genetic tests can be personally useful. Knowing you have a genetic predisposition to slow caffeine metabolism might encourage you to cut back on coffee. Finding you have a gene associated with endurance muscle performance might motivate you to take up running.
This information is for you—it helps you tailor your lifestyle. It is not used by your insurer to penalise you. In fact, by acting on it and improving your health, you could end up lowering your future premiums through a wellness-linked policy.
Furthermore, as a WeCovr client, you get complimentary access to our AI-powered nutrition app, CalorieHero, to help you on your wellness journey. We also offer discounts on other types of insurance, such as life or home cover, when you take out a PMI policy with us, rewarding you for taking a holistic approach to your protection.
Let's walk through a few more scenarios to see how the rules apply in practice.
The landscape of genetics and insurance is constantly evolving. The Code on Genetic Testing and Insurance is a "living document," periodically reviewed to keep pace with science and public policy. The current agreement is widely expected to be renewed beyond 2025, as it has served both consumers and the industry well.
We are likely to see a greater use of pharmacogenomics, leading to more personalised and effective medicine. This is a positive development that private medical insurance is well-placed to support, funding tests that guide doctors to the best treatment pathway from the outset.
The high level of customer satisfaction reported by clients of brokers like WeCovr often stems from the peace of mind that comes from having an expert demystify these complex topics. The UK's framework is one of the most robust in the world, and it is designed with a single goal: to allow you to explore your genetic health information without jeopardising your access to insurance.
Feeling clearer about genetic testing and PMI? The rules can seem complex, but protecting your future health shouldn't be. The UK's framework is designed to give you peace of mind.
At WeCovr, our expert advisors offer free, no-obligation advice to help you compare the best PMI providers in the UK. We'll find a policy that fits your needs and budget, ensuring you understand every aspect of your cover.
Get your free, personalised quote from WeCovr today and secure your health's future.






